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My yearly Strokeboy update. - Danny Danger Oz [entries|archive|friends|userinfo]

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My yearly Strokeboy update. [Apr. 3rd, 2010|02:35 pm]
dalekboy
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[mood |awakeawake]

April 1st, 2006, that's when the universe decided to play a practical joke on me - it gave me a migraine. One that lasted for two weeks. The upshot of which was that the effect on my brain was the same as a mini-stroke. Oh, how we laughed!

So, in a matter of weeks I went from being bouncing, energetic Danny to constantly giddy, no concentration Danny. What made it worse was that after months of waiting to see a neurologist, the one we got was pretty useless. He always seemed to disregard the migraine as a starting point for the problems I was having, concentrating instead on the giddiness, and basically suggested that I take it easy until other symptoms presented themselves so he could make a diagnosis.

It wasn't until a little while after we moved to Canberra that we got someone who joined the dots in a truly Sherlock Holmesian manner. Asking weird questions and putting my answers together. I still remember when he'd said he was 90% certain that I'd had a Basilar Migraine - one based around my brain stem - and I brought up something I'd forgotten to mention, that the scent of my body had actually changed, and he nodded and said that it was just more evidence backing up his theory.

Of course the first and most important thing to do after a stroke is to start retraining one's body and brain, something I hadn't been doing because I'd essentially been told to take it easy. I had started jogging a month or two before the diagnosis because my legs had been getting weaker, but I was basically ten months behind. The doctor we'd seen said that while there was no reason I couldn't eventually make a full recovery, these things are unique to each individual and I may not.

So, where am I at?

Well, I reckon at this point I'm probably at 70%-80% of what I was like pre-stroke. Last year I would have said 60%-70%. Wii-Fit has made a substantial difference in my balance over recent months, which was one of the things that helped hold everything else back, so that's great.

I still take my walking stick with me everywhere, even though I usually only need it when I'm really exhausted, or probably one time in fifty for random balance issues. So essentially I don't need it any more, but having been caught without it once or twice when I really needed it, I like to have it on hand. It's like the spare key to my car that I carry, and the spare fuel I keep in the boot - don't need them the vast majority of the time, but when I do, it's a godsend to have them there.

Lex is still an awesome feat of living physiotherapy. He keeps me on the move a lot, which is good as, being a small child, it's his job. And apart from the times where I'm suffering from lack of sleep, I can pretty much keep up without issue. Insomnia times, I struggle though.

I'm reading more, and my god, most of you have no idea how good it feels to be able to read whole chapters at a time and not have it mentally exhaust you. It's soooo nice!

I'm watching whole entire movies again! And following the plot! Mostly if I have to stop a film these days, it's because Lex has woken up and needs me, not because I can't cope with the concentration. It's really lovely to be able to fully enjoy movies again.

I still get tired out socialising, but it's not as bad. Lex permitting, I can go to large chunks of a convention now, rather than spending most of the time in my room, resting for the couple of panels I'm on.

Slowly catching up on all the work and things that are literally several years behind. Of course my ability to catch up on these is slowed substantially by Lex, but hey, it's his job, and I am still getting there, slowly.

Interestingly, I'm coping with email, reading/writing LJ, and other internet based stuff less. If I have the mental energy, I usually have other house related things to use it on. So that's more a shifting of priorities than anything. And I've always been crap at replying to email. You need me for something - ring!

Got a story I want to write, and assuming I get off my arse and can concentrate on it, may have a market for it. That'd be nice.

Way behind on my business, mostly because all my free time recently has been taken up with house-hunting and dealing with Lex.

But overall, I continue to get better. Hooray! Looking forward to the sheer exhaustion brought about by the appearance of my second master of physiotherapy in late July :)
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Comments:
[User Picture]From: narrelle
2010-04-03 05:51 am (UTC)

My yearly Strokeboy update.

Thanks for filling us in on the details and I'm so pleased for you that things are improving. We're missing you here at Swancon but Sharon seems to be having fun. We caught up for a while today and spent 15 minutes saying how awesome you are! :)
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[User Picture]From: ghoath
2010-04-03 09:35 am (UTC)
wow, 4 years.

I feel somewhat connected, given that it was our first day in Melbourne, and we saw you that day you were going "I've got a headache".

And I also sympathise because I know how it is to struggle with getting one's brain to cooperate with one's desire, in ways that most people would take for granted. It is so frustrating, and so hard to explain to people, as it is so beyond their experience. You can't explain to someone that you want a piece of toast and really can't make it, and really can't even speak to tell them anyway, just as an example from me.

This also makes it 4 years since I met Will for the first time, although we're not sure what day it was Tiki brought us here, so we can't be certain, but I would say it was about the fourth. I keep telling Will it was the beginning of the end of the rest of my life :P

So yay for anniversary thingies, and good to hear that your improvement keeps going into the positive.
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[User Picture]From: mireille21
2010-04-03 09:56 am (UTC)
i am impressed that you can either watch a whole movie in one sitting or read a whole chapter in one sitting. I can't with the wee one around, and often by the time he has gone to bed and night and I've finished with the rest of the chores, I'll fall asleep on the couch *trying* to watch a movie.
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[User Picture]From: dalekboy
2010-04-03 11:34 am (UTC)
Some nights I can't, and some nights the film I'd like to watch I realise are beyond me, so I either opt for something else, or sit around through inertia and indecision for way too long then realise I could have been in bed :)

I try to make a film my reward for getting through the day. I love films and there's just so many out there!

Chapter of a book is generally a before bed thing to help turn off my brain. Don't do it every night, but I find I drop off a lot easier if I've done some reading.
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[User Picture]From: mireille21
2010-04-03 01:40 pm (UTC)
I actually had an enjoyabel time when they showed the Back to the Future films 3 weeks in a row. It was ages since i'd seen them so it was a nice blast for me, and required very little mental input. I have a long list of films and things I'd like to catch up on. Speaking of which (in a nice segue) let me know how much and how to pay for the TZ series 1 DVDs and I will do. I have Paypal and assume you do too, so is probably the easiest.

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[User Picture]From: sonictail
2010-04-03 06:44 pm (UTC)
Hrm, this is the closest thing I have seen for Cliff Notes of Danny, thanks for sharing!
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[User Picture]From: logansrogue
2010-04-04 04:25 am (UTC)
Wait - how did it change? I ask because that happened to me. And I thought it was just the fact that I'd changed deodorants. O_O I also get migraines, but I haven't had one in ages.
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[User Picture]From: dalekboy
2010-04-06 06:36 am (UTC)
Hard to describe. I used to smell one way, now I smell another. I tend to notice people's natural scents, so noticed when mine changed.

I suppose the most obvious change was that I now occasionally get a touch of B.O. when I'm working on stuff. I never used to get stinky armpits! It's so icky!

I only tended to get them about once every 18 months or so. Then I got one that wouldn't go away for two weeks. Go figure.
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[User Picture]From: logansrogue
2010-04-06 06:44 am (UTC)
Weird. My scent returned to its previous smell after a while. I think my migraines are usually brought on by triggers, and going on and off high doses of codeine tends to start me off. I can get horribly smelly if I don't keep myself squeaky clean constantly, so I'm paranoid about that.
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[User Picture]From: sjkasabi
2010-04-05 08:21 am (UTC)
I am so glad you're getting so much improvement!

And do I understand from the expectation of a second master of physiotherapy comment that in my recent internet deprived condition I missed the opportunity to yell CONGRATULATIONS!!1! to you and shazgirl? 'Cos if so,

CONGRATULATIONS!!111!!! :)
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[User Picture]From: redbraids
2010-04-05 02:03 pm (UTC)
I am glad to hear about the improvements, and that the wii-fit is helping.
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[User Picture]From: dalekboy
2010-04-06 06:39 am (UTC)
Thank you! And when is your little one due?

Ours is due late July. 90% chance it's a girl, hoorah!

Then we get to watch as Lex's world is turned upside down and he ceases to be the centre of the universe. Well, we get to watch if we can find the time and keep our eyes open :)
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[User Picture]From: callistra
2010-04-05 12:26 pm (UTC)
*hugs*
I said hello to baby today
:-)
Oh, and Sharon too LOL
God am I exhausted
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[User Picture]From: transcendancing
2010-04-06 06:14 am (UTC)
*hugs* Thanks for the update, have been thinking of you a bundle :)
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[User Picture]From: dalekboy
2010-04-06 06:40 am (UTC)
I slept through the phone last time you rang :)

Life has been busy.
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[User Picture]From: transcendancing
2010-04-06 06:50 am (UTC)
I expected so :) I'll try calling again soon in the next week or so :)
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